Alabama Genomic Health Initiative Leadership

Oversight Committee - Supervision of the Alabama Genomic Health Initiative to ensure maximum value to participants, the research community, and the state of Alabama.

The Alabama Genomic Health Initiative Oversight Committee is charged with reviewing all policies and procedures associated with the project:



Edward Partridge, MD, director of UAB Comprehensive Cancer Center


Rick Myers, PhD, president and science director at HudsonAlpha Institute for Biotechnology

Three additional leaders in the UAB School of Medicine also serve on the Oversight Committee:



Etty Benveniste, PhD, senior associate dean for Research Administration and Development


Robert Kimberly, MD, senior associate dean for Clinical and Translational Research


Toni Leeth, MPH, associate dean for Strategic Planning and Administration

Principal Investigators - Charged with overall responsibility and accountability for conducting the Alabama Genomic Health Initiative

The principal investigators leading the Alabama Genomic Health Initiative are charged with overall responsibility and accountability for the project:



Bruce R. Korf, MD, PhD, chair of UAB Department of Genetics


Greg Barsh, MD, PhD, HudsonAlpha Institute for Biotechnology faculty investigator and chair


Matthew Might, PhD, director of UAB Hugh Kaul Personalized Medicine Institute

Working Groups - Leading defined areas of responsibility for the Alabama Genomic Heath Initiative

Bioethics Working Group

The Bioethics Working Group is charged with ensuring the highest standards of ethical review and practices in all areas of the initiative. This includes a full review of all protocols to ensure high levels of confidentiality and transparency to participants regarding benefits and risks associated with participation in the Alabama Genomic Health Initiative.

Co-chairs



Tom May, PhD, faculty investigator at HudsonAlpha Institute for Biotechnology


Mariko Nakano, PhD, assistant professor at UAB School of Medicine


Stephen Sodeke, PhD, bioethicist and professor of Allied Health Sciences, National Center for Bioethics in Research and Healthcare, Tuskegee University

Data and Biobank Working Group

The Data and Biobank Working Group is charged with developing a plan to manage confidential storage and future analysis of blood specimens, DNA, and analysis data returned by HudsonAlpha Institute for Biotechnology. This working group will ensure the highest standards of confidentiality for participant data, while developing a data plan for future research opportunities made possible by the Alabama Genomic Health Initiative

Co-chairs



Jim Cimino, MD, director of UAB Informatics Institute


Jeff Edberg, PhD, professor in UAB Division of Clinical Immunology and Rheumatology

Education Working Group

The Education Working Group is charged with the development of educational resources both online and in print for participants and the general public. Helping provide information about the value of genetics and genomic medicine is an important goal of the Alabama Genomic Health Initiative.

Co-chairs



Ashley Cannon, PhD, assistant professor and genetic counselor at UAB


Kelly East, genetic counselor at HudsonAlpha Institute for Biotechnology

Genomics Working Group

The Genomics Working Group is charged with the actual analysis of each participant’s blood sample and developing a report of the results to return to consenting participants and providers. This working group is also responsible for convening a variant review group to determine actionable findings to communicate back to participants and providers.

Co-chairs



Greg Cooper, PhD, faculty investigator at HudsonAlpha Institute for Biotechnology


Anna Hurst, MD, assistant professor in UAB Department of Genetics

Participant and Provider Engagement Working Group

The Participant and Provider Engagement Working Group is charged with recruiting participants who represent the demographics of Alabama. This working group is also engaging key stakeholders to evaluate recruitment, education, and communication strategies associated with the Alabama Genomic Health Initiative.

Co-chairs



Mona Fouad, MD, UAB senior associate dean for Diversity and Inclusion


William Curry, MD, UAB associate dean for Rural Health and Primary Care